Emily's MRI

This is the latest post in the series of William, grace and Juliet's journey with hypophosphatasia. And now adding Emily to the list.

Today Emily had her MRI up in Grand Rapids.  The appointment wasn't until 11:30, so Emily had time to finish up her school work before we left.

The hospital was not as busy as it was before Corona, but busier than our previous trip.

We wore our masks, as required, but they had us swap for hospital masks upon entry?

In radiology we had a little bit of a wait.  Emily replied to her teacher (via snail mail,) then worked on some mind puzzles, then colored the back of some papers I had in my bag.  

Once it was finally time to head back, she had to change into hospital garb and pick a movie to watch during the procedure.  I recommended one that she had seen, since she would not have time to finish it.  She picked Frozen. = )

I did my best to prepare her for the procedure, telling her that she would lie on a board that would slide into a giant 'donut' and it would be really loud.  When she saw the machine she said "it does look like a donut!"

They put on a headset and optical set so that she could watch the movie during her procedure.  I had to wait in the changing room (they did offer for me to go back to the waiting room, but it was further away.)

Once she was all done, we were good to go!  This was the longest I had worn a mask at any point since this started, so it felt good to take it off in the "safety" of my car!

Sonic was our next destination, since I needed something to look forward to about this trip.  We managed it in a short time, but with the interstate closure, traffic was truly traffic!  I felt like I was merging back on to beltway 8!

While we were waiting in the drive thru, the hospital called to let me know that the next endocrinology appointment will be virtual.  They gave me some instructions on how to enroll the kids (all 5 of them!) ahead of time.

I got another call, also from the hospital, letting me know that the doctor had reviewed Emily's scan and that everything looked normal.

It was a really nice surprise, since I figured we wouldn't hear anything for a while!

So, good news, it's probably not seizures, bad news, we still don't know what is going on with our Emily.

later days

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what happened next>

April 25th, 43rd Day of Quarantine

The high today was a respectable 55F.  It's not brutally cold when you open the door, which is a nice change.

Grace started the day by unloading the dishwasher for me! <3

For lunch the kids had some mac and cheese.  We spent the day watching videos and not doing much of anything. I took a nap too!

I got a call to schedule Emily's MRI.  We'll be heading to Grand Rapids on May 15th.  At least she doesn't have to fast or stay awake this time.

For dinner we had some frozen pizzas.  I'm trying to clear out a space in the freezer to put the cold packs that we have for the kid's medicine travel cases.  Hopefully we won't need them on the spur of the moment.

I made some brownies afterwards, that went over well.  = )

Now, Emily is making some fun videos of her siblings "teleporting" on her phone.

later days

The Rollercoaster of Neurology

This is the latest post in the series of William, grace and Juliet's journey with hypophosphatasia. And now adding Emily to the list.

Yesterday the Neurologist called, and as he was finalizing Emily's note from our visit, was revisiting the chart and is recommending an MRI for her, just to be sure we're not missing something.

He indicated that this was not a rush order, and that we could wait until after the virus has calmed down. Unless, of course, something in her health changes.

I failed to ask him if he found something concerning, which, since he called me might have been the case?  He caught me off guard since I had already closed that appointment out in my mind.

So, the next time we are up in Grand Rapids, we'll get Emily scanned.

later days  

<what happened previously
what happened next>