04 August 2019

A Nice Improvement

This is the latest post in the series of William, grace and Juliet's journey with hypophosphatasia.  And now adding Emily to the list.

Just a few short weeks after Emily's trip, we found ourselves back in Grand Rapids for a scheduled visit with the Ophthalmologist, this time with Alice and without Daddy and Emily.  

Preparing to go is always so colorful.



They are continuing to monitor for pressure on the optic nerve.




But William and Juliet received excellent news: they no longer have to wear their patches!  We had been quite consistent with it all summer, so this was a nice pay off. = )

They will return in 4 months for a routine follow up.

We went to the outdoor pavilion to eat our lunch, and they played for a while before getting back in the car to make the drive home.



It was a much less emotional trip for me than the previous one.  I'm not looking forward to October's visit though.

later days

<what happened previously
what happened next>

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