This is the latest post in the series of William, grace and Juliet's journey with hypophosphatasia.
The week prior to seeing the pulmonologist, Grace had to do some testing. When we met with the doctor on Monday morning, it was just the two of us, Avia kept tabs on the other four.
The doctor essentially said that he doesn't see any cause of concern from her testing, or in office observation. He wants to do a sleep study, but the first time that would work for us and them wasn't until September. He did say that her tonsils and adenoids were large comparative to her size, but wants to evaluate the results of the sleep study before we make any plans.
Avia was taking the other four to dollar tree, so I offered Grace the opportunity to go somewhere fun as well. She picked McDonalds. = )
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The next appointment was on Wednesday. The twins had to return to the dentist for their crown. Plan A didn't work quite as well as expected, but well enough that they were able to build up the middle of the tooth and just shave the sides. The dentists were quite happy with the fit of the crowns.
We will not need to return until their regular 6 month visit this fall. = )
We also saw Hawkeye again!
And Grace wanted a picture of the squirrel to show daddy.
On campus. I thought it was ironic considering the location.
On Friday, it was Alice's turn. She had an appointment to pull one of her baby teeth that was overstaying it's welcome. Avia took the other ones over to a park during her appointment, so when we finished, we walked over to the library to read while we waited.
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The following Thursday, William, Grace and Juliet all had an appointment with the Craniofacial doctor. He is the only yearly doctor. He doesn't have to keep super close tabs, as the other specialist will notify him if they find something concerning.
He does not have any immediate concerns. He did warn me that as their heads grow and change, there many come a time when they correct the shape of the skull. This won't happen until they are around 10 years old. It would be an extracranial procedure, with a single overnight stay at the hospital, and no blood transfusions or ICU. It only takes around a week for most patients to recover, and they would cut on their existing scars.
I'm not elated by this news, but it sounds like a fairly straight forward procedure. As they age, I know they will have more opinions and preferences, so I'm glad it's still a few years off.
Aunt Rocky brought us donuts! The big girls and Avia had already gotten into theirs, but we hung out in the parking lot while everyone finished their treat.
You'd never know that this isn't aunt rocky by just glancing in the rearview mirror:
In a few weeks we go up to Grand Rapids for an appointment, but thankfully next week is looking nice and void of doctors!
later days
<what happened previously
what happened next>
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